Bronco Hockey Teams Up With Jesse's Journey for Ice Duchenne Weekend
Louie Facca, son of associate head coach Rob Facca, was diagnosed with Duchenne's Muscular Dystrophy four years ago. Duchenne's is the most common fatal genetic disorder diagnosed during childhood, affecting approximately one in 3,500 boys worldwide. The disease results in the degeneration of muscle and affects the legs, heart, lungs and brain. While there is no cure, aggressive therapy and treatments have helped Louie and many boys around the world slow the effect of the disease.
Beginning in May, Louie's Grandpa Bob will walk 2,500 miles from Quebec City, Quebec to Winnipeg, Manitoba to raise money to spurt research and increase public awareness for DMD.
In addition to supporting Louie and the tens of thousands of young boys who are affected, Grandpa Bob is also carrying on the work started by John and Sherene Davidson. Their son Jesse was diagnosed with Duchenne's and in 1995 John began his incredible mission of pushing his 15 year old son across Ontario in his wheelchair. In 1998 John, this time alone, trekked for over 5,100 miles across Canada and generated $2 million in donations. The family founded Jesse's Journey - The Foundation for Gene and Cell Therapy and have now passed to the torch to Grandpa Bob.
Bronco hockey is also being joined by the seven other member schools of the National Collegiate Hockey Conference and the league office in supporting Jesse's Journey and Grandpa Bob. Every team this weekend will be wearing "No Bad Days" stickers on the back of their helmets.
Fans in Kalamazoo can donate during Friday and Saturday's games against Nebraska-Omaha. "No Bad Days" and Jesse's Journey bracelets will be on sale in the concourse. A collection will also be taken during the game and the first 2,000 fans each night will get "No Bad Days" rally towels. Donations can also be made via checks made out to the WMU Foundation with "Ice Duchenne" in the memo or online at www.mywmu.com/nobaddays. Any donation of $500 or above will receive a Danny DeKeyser autographed Detroit Red Wings jersey.
On Saturday night a ceremonial puck drop will be held with Grandpa Bob, Louie and DeKeyser. Fans will be asked to wave their towels and cheer on Grandpa Bob and Louie as they walk around the rink.