Help Support Ice Duchenne 2012
KALAMAZOO -- This weekend across the Central Collegiate Hockey Association, the coaching staffs of all 11 teams will band together to help raise awareness for Dechenne (pronounced doo-shin), muscular dystrophy.
The Ice Duchenne project is spearheaded by Western Michigan assistant coach Rob Facca, who's four year old son Louie has been diagnosed with Duchenne's.
Duchenne's muscular dystrophy is the most common fatal genetic disorder diagnosed during childhood, affecting approximately one in 3,500 boys worldwide. The disease results in the degeneration of muscle and affects the legs, heart, lungs and brain. While there is no cure, aggressive therapy and treatments have helped Louie and many boys around the world slow the effect of the disease.
"This is a disease that affects people and not a lot of of people know about it," said Facca. "There is a shock factor when someone gets diagnosed with it because they just don't understand the disease. This is all about awareness and making people realize there are little boys all over the world getting affected by it and we want to work hard to help find a cure."
To do their part to help raise awareness as well as financial support for Parent Project Muscular Dystrophy, coaches around the CCHA will be wearing "Ice Duchenne Pins" on Saturday night that also say "No Bad Days" at the bottom, a tribute to the No Bad Days foundation that Facca established for Louie.
Western Michigan will be holding an online auction to raise funds for PPMD starting on Thursday, Feb. 9 at 5 p.m. and closing on Sunday at 11:59 p.m. through www.wmubroncos.com. There are only four items up for bid, a signed Nicklas Lindstrom jersey, a jersey signed by the 2010-11 Hart Memorial Trophy winner Corey Perry, a Detroit Red Wings jersey signed by the 2011-12 team and four floor seats to one Indiana Pacers home game of the winners choice (excluding games against the Miami Heat and New York Knicks). A link to the auction will be available at www.wmubroncos.com on Thursday.
WMU will also be selling "No Bad Day" bracelets during Friday and Saturday's games versus Ohio State. Fans can also text the word "CURE" to 90999 to make a $5 donation that will be charged to their phone bill. Donations can also be made a www.iceduchenne.org
Fans can also help spread the message via social media by using #IceDuchenne and #NoBadDays when tweeting this week.